Yesterday and today were really busy. I had a lot of appointments and then I got to spend the night at the hotel with my stepdad and Grandma & Grandpa Siemann and my Aunt Julie. Even my sister Kaitlyn came and that made me cry. Usually we argue but this time I was really happy to see her! Lincoln-Way sent a bunch of more presents and now there are so many I lost track! I hope it's okay with you if I don't say thank you to each person cause I'm afraid I'll forget somebody and hurt their feelings. But I love all of you and thank you SO MUCH for remembering me. I had a really long MRI today and my mom can tell about that. I don't like to talk about that stuff.
Love, Bree
Note from Parents:
The last 2 hour MRI was 2 weeks ago on Halloween and at first the doctor said there didn't appear to be any change in the size of the tumor (not a big deal...could swell, stay the same or get smaller and could take any amount of time - even a few months after radiation before the tumor begins to shrink). He called a few minutes ago and said that while consulting with the radiologist the radiologist would "guesstimate" about a 10-15% reduction in size of the tumor so far! He warned it was only a guess as he was working on exact measurements, but definitely goodo news and he called us so we could celebrate with the family this weekend. Three possible results and we are blessed to already be seeing a reduction in size. The doctor said even if there was no change in size she is doing very well being weaned off of the steroids so he knows the radiation is having a positive effect.
We are going out to dinner tonight, swim at the hotel, sleep in very cozy beds at the hotel and enjoy a relaxing weekend!
Thank you everyone for all of your support! Thank you to the Lacewell family and friends for your kind words of supprot and your prayers. We would like to add a note for everyone reading our updates. Though we don't have exact statistics, we have been told that there are maybe 100-150 kids diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma) annually. The fact that 2 children were diagnosed from Naperville, sharing the same family physician and diagnosed in the same month, and we live only about 2 miles apart...makes you believe there is a greater power that has brought us together. If you think about the connections we have in combining our efforts it is overwhelming! The Sharp/Siemann family and Lacewell family and all of their friends will make a huge difference in the lives of Max and Brianna. They are both an inspiration to all of us and they will have a connection with each other that no one will ever be able to comprehend.
We are not going to forget to shout out to Kole Miller (4 years old with the same diagnosis), our little buddy next door at Ronald McDonald House. He is a champ and we love him so much!! We lso love his sister Mckenna (10 years old)! Keep chuggin', Kole, and we will continue praying for you every day!
Brianna, Max and Kole ... you are inspirations to us all! Stay strong and brave!
Love and prayers,
Brianna's family
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