Back Home and St. Baldrick's - March 16

Hi everybody. I got to come home from the hospital on Friday and I am feeling a lot better.
All the doctors said that my bad headache is just a migraine! That's a relief! So now I am just getting excited cause my Aunt Julie is getting married! In a few weeks I have to go back to St. Jude but all I can say is just tell me what to do and I'll do it. I don't really like to talk about all the medical stuff. Just fix it, that's all! St. Baldrick's was great and Uncle Dave and some other people even shaved their heads in my honor! Wow! Uncle Dave let me take the first swipe of cutting his hair off. It was fun! Maybe we can even do it again next year. I hope so.
Love,
Bree

Note from Parents (Mom Jennifer):
Wow!!! I love roller coasters, but not the one we have been riding since October!! Doctors from St.Jude, Central DuPage Hospital, Edward Hospital, primary doctors and specialists all worked together and all concurred that the tumor was not causing the headaches. What a strange experience to have everyone "jumping for joy" that Brianna is a migraine sufferer! We were dreading that particular diagnosis back in October after the CT scan showed no tumor. Her headaches continued so the next weekend we thought for sure she must be suffering horrible migraines or serious tension headaches...a tumor was not at all what we were expecting. So, we began a very scary, unpredictable and uncertain journey.We are glad to have Brianna back home and pray that she has a great week! As we still have a few weeks until our return trip to St. Jude, we will continue to pray that the "area of concern" following the February MRI, is in fact a cyst or a sign of necrosis (dying of cancer cells)Brianna has told us from the very beginning to, "Just tell me what I gotta do and I'll do it!" She doesn't want to know any details and never asks for results of tests. They even used that quote for the headline of the St. Baldrick's event where Brianna was an honoree! However, Matt and I decided to share this information with Brianna as it would without a doubt lift her spirits to know that it isn't the tumor causing the pain!! I do believe she felt instant relief and her spirit returned almost instantly!St. Baldrick's was an amazing experience!! We were not sure what to expect so we were all blown away by the wonderful people and the amount of support they put forth for pediatric cancer. At the beginning of the event we listened to a few speeches. A 14 year old survivor of a very rare form of leukemia, a 23 year old who described what it was like to lose his younger brother to testicular cancer, and a parent of a little girl who is now cancer free. I must admit during this time I wasn't sure I would make it through the event, but the inspiration I received from those people meant too much. It is our goal to have Brianna give her survivor speech one day.Uncle Dave and Uncle Jeff volunteered from our family to shave their heads in honor of Brianna. You can see the pictures I added to the gallery! Brianna had such a wonderful time that she sent me a text message asking if we could do this again next year!!We would like to thank you for your continued support and prayers as we gain such great strength from our greatly expanded community!! Whether it is through your donations, kind words, prayers, cards, etc. We feel blessed to have such support. Brianna, Max, Kole, Liam, Carter, and all the DIPG warriors are true inspiration to all of us and they remind us to not take anything for granted! We parents have the honor of raising these children sent by God! They are God's children first and he has a plan for each of them. We may not know what the future holds and we pray for our will to be one with God, we know that they have already made a difference in the lives of people far beyond what most people may accomplish in a lifetime! They have already demonstrated strength, courage, determination, and love far beyond what many people can comprehend!
God Bless!!

Brianna's Family