Medieval Times - June 1

Hi -
I really had a great weekend. We went to Medieval Times on Saturday and it was really fun. I LOVED the food but it was kind of gross eating with my hands. LOL
I was supposed to go to church on Sunday but I didn't sleep very much Friday or Saturday because of the medicine I take and after breakfast my stomach hurt so Mom let me go back to bed. I felt a little better after I slept. After lunch I felt pretty good again and I got to go to the mall to get my nails done. That was a treat. Then we went to the pet store at the mall and I got to play with one. It was really cute.
I still have some more radiation but you know I don't like all that stuff so I'm gonna let Mom tell about it.
Thanks for reading and sending all your love and prayers,
Bree

Note from Dad Matt:
Brianna has some more radiation treatments to go and is still taking the Temodar along with the pain and nausea medications and has tolerated them quite well. Tomorrow (Tuesday) she will go into Children's for her normal checkup. She will get her blood drawn first so that they can check blood levels and see if she might be able to go back on the Avastin. If her levels are questionable then she will get the Pantanamine antibiotic infused. (She will get that once a month via her port.) Then she might have to wait for the Avastin until the blood levels are good enough to resume. We hope that her levels are good enough today to resume.
She is continuing to wean off the steriods little by little and hopefully that can continue as that is the main reason for her inability to sleep through the night. She has been and continues to be a trooper and is always doodling in her notebooks and watching TV and taking naps as she gets tired throughout the day.
This weekend starting Friday afternoon we have the American Cancer Society's Relay For Life. Jennifer is working really hard to organize this thing and I won't steal her thunder as I will let her explain that in the next update. We have a link on the www.curebrianna.com webpage if you would like to support us in this effort. Just go to the GET INVOLVED tab on the site and the link is there!
Please keep Max, Kole, Alexis, Andrew, Ravyn, Caleb and all the other DIPG warriors in your thoughts and prayers. Brianna's Brigade will be thinking of them all night next Friday into Saturday as we participate in the Relay for Life!!!!
Matt, Jennifer, Brianna and the rest of the gang