Special Note from Brianna's Mom, Jennifer:
It has been quite awhile since I posted an update so I hope you are patient with me as I have much news to share...
We leave tomorrow morning for St. Jude. I am extremely anxious and pray for good test results. We will return on Thursday and I will post an update with any/all results from the trip.
We have been incredibly busy over the last couple of weeks. Bob and I took Brianna to meet Fr. Rookey (healing priest in Olympia Fields) and the experience left Brianna speechless...until the 45 minute car ride home where she couldn't stop talking about the experience. I asked Brianna if she wanted me to hold her rosary as we were getting ready to leave and she glared at me with an "Are you crazy?" look and pulled it away from me. She immediately packed the rosary in her bag as Matt picked the girls up for Disney that evening. She has been praying every night, but has taken a new interest in praying the rosary and reading stories about different saints. Brianna left Fr. Rookey and his assistants with the following advice:1. BE PERSISTENT!! Never stop praying and asking for divineintervention.2. Pray the Rosary!! Every day even if you don't remember how, just sayany prayer you know for each bead.3. "Nag" Mary the Blessed Mother---just like you nag your ownmother...never stop until yourprayers are answered. (This shouldnot be a problem for her at all!!)
Last week I took Brianna and Kaitlyn to a healing mass in Northlake. Thanks to Coach Dougherty and the LW Central football team I was able to make a connection with a parent who told me a story about a woman who was miraculously healed from an inoperable brain tumor. Her name is Colleen Willard and the connection she felt with Brianna is remarkable. Thank you Sharon Kolava for inviting us to this mass as we look forward to more opportunities to become closer to God and feel the love of Jesus and the Blessed Mother. Colleen Willard, laying her healing hands on Brianna, brought us much strength and peace. Colleen made it clear to me and all who were present that, "Brianna is a special child chosen by God and has a strong spirit to endure such suffering." "Brianna has a special purpose and closeness with Jesus and is truly in the hands of God." She is carried by Jesus and also the Blessed Mother who guides her and watchs over her constantly. Colleen leaned over to me and said that she has three words she wants me to repeat over and over, "Don't Be Discouraged!" This is my greatest obstacle to overcome as I struggle daily with these feelings. How did she know to say those exact three words?
Finally, I have several people I would like to thank for their hard work, kindness and generosity.1. Lincoln-Way staff and students for the warm welcome back! It iswonderful to be able to see everyone after so long and finally beable to personally thank them for their continued love and supportfor Brianna, myself and our family.2. Leanne Lacewell and friends for the many meals provided in order tomake my return to work as stress-free as possible. Food is delicious!3. Gregory Middle School staff and students who coordinated andparticipated in the hat day fundraiser for Brianna, as well asthe Baylie's for Brianna, and Brianna's Brigade t-shirt fundraisers.4. Mary Onley for coordinating, and everyone who participated in theJewel Shop-and-Share fundraiser. Your continued support is greatlyappreciated and we hope you are able to help us out againbefore Easter and Memorial Day!5. Thank you to everyone who has joined Brianna's Brigade by purchasinga t-shirt. Initial orders were submitted today, but we will continueselling and placing orders as we receive more requests. Brianna isvery excited that people are going to wear HER t-shirts!5. My husband Bob, whose love and hard work are very much appreciatedand admired. He has taken on many additional responsibilities anderrands while I tend to Brianna and try to get back to mywork routine. I probably don't thank him enough for all that he doesfor our family! The thing I need to thank him for most of all is hisdeep spiritual faith and ability to pray with and for Brianna tobring peace to her when she needs it most. When I feel discouragedor have moments of weakness Bob is able to get me through.
We are very happy to report that Max's tumor is down 30%!! Please continue praying for all the DIPG children and send some extra prayers for Brianna as she undergoes a 2 hour MRI on Wednesday. May she be blessed with God's mercy and experience the Lord's healing power and may she grow in hope and faith as she continues on her spiritual journey.
God Bless!!
Jennifer (Brianna's Mom)
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I have been following this website for more than 2 years now, admin kindly post and share this to give other brain tumor patients hope that they can get a cure.
Three years ago I was diagnosed with GBM after a CAT scan. I went through neurosurgery, radiation, and 14 months of chemo treatments but the symptoms all remained and even doubled, the constant thundering headache, seizures was twice than it was before, i could no longer think straight and i had constant mood swing and trouble speaking i was almost feeling at the gate of hell because these symptoms were unbearable. I am retired but very active spending my time to make the world a better place. I retired from a career in law and non-profit administration, and judging from how active i was this new life was not working and i was patiently waiting for when i will give up the ghost. My husband never accepted the fact that he will lose me to the cold hands of death which was what made him to seek other treatment options and that was how he came across "elixir" a herbal medicine treatment which i took for 12 weeks and it gave me a second chance in life, gave me a new life and totally cured me of my cancer. My neurologist had told me before then while i was at the hospital that i had less than 4 months with the rate at which the tumor was growing and expanding. I am happy today because i am completely free of cancer because i have ran several tests and diagnosis because i am still in shock on the efficacy of elixir. Never give up hope or rely only on chemo or other surgical treatments because herbs work too, i never believed until now that i have experienced it. You can contact doctor Rahul personally for advise, counselling and how to get elixir on drghandiherbs@gmail.com I am grateful for every day that I am still alive and well.
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