New Steps in the Journey - April 15

Today my dad is gonna write the blog because it's all about the medical stuff and I don't understand a lot of it. Thank you for visiting my website again.
Love,
Bree

Note from Brianna's Dad (Matt):

We have made a decision in the next steps of Brianna's treatment now that her tumor has been classified as in progression (growing again). Brianna will be going once every two weeks for infusions of Avastin (Bevacizumab) and Irinotecan (CPT-11) that will be given to her through her port that she has had in since late October. Up until now the port has been utilized to draw blood for lab reports and occasionally administer pain meds like she had to have last week. There were no more spots available on the Avastin/CPT-11 trial open so we opted to go off study and hope that Insurance will cover this.

Now that we are not under the constant care of St. Jude and now are with Chicago Children's Memorial this will create a little more work with the insurance company in covering the drugs and such. St. Jude didn't ding the insurance quite as much as they could have and were absoutely on top of every step with me in working on the insurance stuff. Now that we are at Children's Memorial this is where the Medical fund that was established back in October will really come into play. The fund has paid for some of the doctor's vists and a couple of hosptializations back here in Chicago, as well as the supplements and other things relative to Brianna's medical care.

So now even more important are the fundraisers that we will be doing for Brianna's care.
The next one is this Sunday at Brianna's Grandma Pat's house. For $15 you can get a blue hair extension and the proceeds from that will go to The Brianna Sharp Medical Fund!
When: Sunday the 19th of April
Time: 1:00pm to 5:00pm
Where: Brianna's Grandma Pat's house906 Jaipur AvenueNaperville, Illinois
Cost for extension: $15
We will be having my sister in law, Ania there to take pictures of anyone who wants to have their picture taken with Brianna! It should be a great day and we invite everyone to come!\
And we are also doing another fundraiser at Danny's Pub on the 25th in Naperville! Here are the details of that one:
Date: Saturday, April 25, 2009
Time: 1:00pm - 4:00pm
Location: Danny's Pub and GrillStreet: 1550 N Rt 59
City/Town: Naperville, IL
Its $20 per person ($10 goes to Brianna's fund) which includes 2 drink tickets for soda,domestic draft or well drink and lunch - burger, chicken or deli sandwich with french fries, soup or salad.
We really appreciate the love and support that you all have shown throughout this journey. This has been a roller coaster for all of us and we certainly could not get through each day without all the support from our family and friends and everyone else that has been following her story.
Matt (Brianna's Dad)