This blog is from my parents. It's got a lot of medical stuff in it and you all know I don't like to talk about it much. I just want to get well. So today is mostly for parents.
Love, Bree
From Brianna's Parents:
The websites and Youtube clip inclkuded in this update may not be for everyone. The websites include links to DIPG warriors' websites, as well as other ways you can help promote our cause. The sites and the Good Morning America clip also honor DIPG angels.
We previously asked everyone for help in assisting us by contacting your U.S. Representatives and Senators in order to push for current legislation that would help pediatric brain tumor patients. Though there are many different types of pediatric brain tumors, Brianna and all of the DIPG warriors have a tough road because their tumor accounts for only about 5%-10% of all pediatric brain tumors. (150-200 children are diagnosed annually in the U.S.)
The percent of money spent on pediatric cancer research is lacking in comparison to other types of cancer. With DIPG, we have an extremely small community and we can only get our voices heard if we can count on people like you helping us in our efforts to promote awareness. Whether it is for pediatric cancer in general, more specifically pediatric brain tumors, or even more specifically Diffuse Intrinsic Pontine Glioma, the families and friends directly related to the brave DIPG warriors would be forever grateful for your support and contributions to promote awareness and research that will hopefully lead to a cure.
We have many friends fighting the same battle as Brianna and we include them on our updates and pray for them daily as the DIPG parents have developed a support system and at the same time are working on promoting our cause.
For Brianna, Max, Kole, Liam, Caleb, Carter, Derrick, Keleigh, Skylar, and many more warriors we thank you for your continued support and prayers!
We are including those organization website addresses and hope that you will visit to learn more about how you can help. We also included a video clip from Good Morning America, which tells a story about a little girl who made a difference and her parents are working hard to promote awareness for pediatric cancer.
You will have to cut and paste into your browser in order to view!!
www.justonemoreday.org
www.icouldbeyourchild.org
www.thecurestartsnow.org/gma (Good Morning America clip)
God Bless You! Thank you to everyone who prays for and holds a special place in their heart for our DIPG warriors and angels!!!
Brianna's Family
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