Note from Brianna's mom, Jennifer:
Well, I was finally able to post the NEW PHOTOS from Brianna's surprise 13th birthday party along with her birthday event with Kole (our DIPG buddy from St. Jude who turned 5) and the birthday outing for Brianna and Kaitlyn with Ms. Beauregard at Color Me Mine. I also posted two pictures as proof of Kaitlyn's words written on the patio. She wrote the most loving note to Brianna. You will have to click on the larger images if you want to see the entire picture for each thumbnail. We hope you enjoy as you can see how wonderful she looks and how incredibly happy she was at her surprise party!! Thank goodness we postponed the St. Jude trip for one more week as we were able to enjoy her 13th birthday without any knowledge of the tumor progression.
Unfortunately, we have had a rough two days as she experienced a painful episode Sunday evening and was not feeling well for a majority of the day today. She slept most of the day today with a little energy burst in the early evening when she decided to paint. Around 8:00 this evening she experienced her worst episode ever where the morphine didn't kick in for at least an hour and she was begging for an ambulance to take her to the hospital. It broke our hearts is a huge understatement, as there is nothing we can do but wait for the medicine to kick in. Where it usually only takes 10-15 minutes, tonight it took at least an hour before she found relief and even then her pain was at a 7 for another hour. Recently, her pain is mostly in her back (between her shoulder blades) and when it gets really bad the pain shoots into her head causing the headache to become a 10. Bob and I feel helpless as all we can do is hold her, pray for her, and anxiously wait for the nurse to arrive. The pallative nurse is not left to do anything but talk with her, check vitals, and record the information in the chart. She stayed long enough to make sure Brianna was comfortable and o.k. with her leaving.
After these past two days we can not wait to get to Children's to begin the NEW TREATMENT tomorrow. Please pray that all goes well and that the new treatment proves to be effective and also has limited side effects that she will have to deal with. We are in for a very long day and hope that all goes well. A little prayer to avoid the evening rush hour would also be helpful! :-)
Thank you for your outpouring of love and prayers over the past week and a half as I have been blessed with a huge amount of peace! I have mentioned to some people that I could say I am in shock or denial, but I know that it is neither...it is a grace that is something I can not put into words and I am left feeling that Brianna is now (actually always was) 100% in God's hands and I wouldn't have it any other way. We will pray for a miracle healing, pray that He is guiding the doctors caring for DIPG children, and we will fight as long as she is willing to endure and has the energy and spirit that still shines though. We will also pray that our will is one with God's.
We will be attending the religious healing retreat this weekend and will have a visionary pray over her, along with Colleen Willard (who was miraculously healed from an inoperable brain tumor), and Mother Nadine from the Intecessors of the Lamb in Omaha, Nebraska. Please pray that Brianna be blessed with a healing in mind and body! God bless you all for supporting us through this difficult journey! We are eternally grateful for all of your kind words and unending prayers!
God Bless! Jennifer
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2 comments:
I don't know you but I have followed your story and continue to keep you in my thoughts. I hope the new treatment is a success.
I have been following this website for more than 2 years now, admin kindly post and share this to give other brain tumor patients hope that they can get a cure.
Three years ago I was diagnosed with GBM after a CAT scan. I went through neurosurgery, radiation, and 14 months of chemo treatments but the symptoms all remained and even doubled, the constant thundering headache, seizures was twice than it was before, i could no longer think straight and i had constant mood swing and trouble speaking i was almost feeling at the gate of hell because these symptoms were unbearable. I am retired but very active spending my time to make the world a better place. I retired from a career in law and non-profit administration, and judging from how active i was this new life was not working and i was patiently waiting for when i will give up the ghost. My husband never accepted the fact that he will lose me to the cold hands of death which was what made him to seek other treatment options and that was how he came across "elixir" a herbal medicine treatment which i took for 12 weeks and it gave me a second chance in life, gave me a new life and totally cured me of my cancer. My neurologist had told me before then while i was at the hospital that i had less than 4 months with the rate at which the tumor was growing and expanding. I am happy today because i am completely free of cancer because i have ran several tests and diagnosis because i am still in shock on the efficacy of elixir. Never give up hope or rely only on chemo or other surgical treatments because herbs work too, i never believed until now that i have experienced it. You can contact doctor Rahul personally for advise, counselling and how to get elixir on drghandiherbs@gmail.com I am grateful for every day that I am still alive and well.
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